Wednesday, March 31, 2010

My Superhand Baby



Its about my super hand baby. I am looking for help to recover my sons hand. His right hand palm is missing. Only half portion of hand is there. I tried to speak to Surgeons but they are helpless. Can any one help? or help me by suggesting  the right doctor? I have never seen such a hand. Please share your experiences so that I can be little relaxed.God was so cruel to me. Science has reached a long way but my son don't have a treatment for his hand.

Born on 31st July 2009 in Holy Cross Hospital, Kottiyam, Kollam. I got him after a waiting of 12 years. I was so happy to hear from the sister in charge that I got a baby boy and she showed me my towel packed beautiful baby. I was so happy and thanked God with tears for his mercy that everything went good as it was a normal delivery and I got a perfect child. But I ever never thought that this tears will follow me and my son in our whole life.
After passing around an hour or so they kept my baby on my bed for feeding. The same sister in charge sat on my bed and told me that "I need to tell you some thing". I reply with a smile, please carry on.( I thought it would be on some general topic as she used to talk to me every time as I was admitted in that hospitals labour room due to slight increase of B.P. She was showing some special interest to me in talking. She was so nice and caring I always liked her presence.) She holded my hand and started saying about my babies hand. By that time she called my mother and other sisters who was present in the Labour Room. I was in a shock and could not understood what to do. I stayed calm as I was in a shock. My mother and husband who was waiting outside the room was aware of the incident from my Gyne. Everyone tried to calm me in their own good words. After some time they moved me to my room.
How can we inform about my delivery to our relatives? But we have to inform everyone. My house is near the main road so the people who passes through also started asking about me to my husband as I am missing from the house from weeks. First time we kept it as a secret. But we could not keep this secret with us so long. The whole hospital staff, patience and the shop keepers outside the hospital came to know about this. Lots of people came to see us. Relatives, friends etc. Some told some good words. Some tried to feel themselves bad.
The most paining experience happened when one of my relative told in front of us that she don't want to see the child as she is afraid after hearing about his hand. In reality she was mother of two. Now, after passing three months of my delivery, she is expecting her third child. Can any one hear this line about their new born child. Yes, I was lucky to hear that. God made me so shameful in front of the whole world and my son is a joker. Ladies teases me from the back.
Now I am leaving life with my kid without the help of anyone. I am trying to keep him as a normal child. I have never seen such a hand in my life. We meet thousands of people every day but never such a handl  People look at me and my child with such a petty look. It hurts.... it really hurts God. I have not seen a single day without tears from last 7 month. It is still continuing......
Now my baby is 7 month old with two beautiful teeth. Facing problem in holding things. But managing things with his left hand. I wish I could protect him  from the bullies in school when he is older but that’s something to deal with in the future!
Today, 31st July 2010, its his birthday.  Managing everything with one hand. Hope he will continue his journey like this through out his life....




Tuesday, March 30, 2010

Amniotic Band Syndrome (ABS)

Amniotic banding affects approximately 1 in 1,200 live births. It is also believed to be the cause of 178 in 10,000 miscarriages. ABS occurs due to a partial rupture of the amniotic sac. Fibrous bands of the ruptured amnion float in the amniotic fluid. and can encircle and trap some part of the fetus. Later, as the fetus grows but the bands do not, the bands become constricting. This constriction reduces blood circulation, hence causes congenital abnormalities. It is  often difficult to detect before birth. Amniotic band syndrome is considered an accidental event and it does not appear to be genetic or hereditary, so the likelihood of it occurring in another pregnancy is remote. The cause of amnion tearing is unknown and as such there are no known preventative measures.

Full details are available on : http://en.wikipedia.org/wiki/Amniotic_band_syndrome

Sunday, March 7, 2010

Super hand kinds and heroes

This blog is regaring my son Allen. Born with a super hand.

The following link contains  pictures and details about superhand babies.

http://www.superhands.us/